Featured Speakers & Presentations

 
 

Keynote Speaker

Special guests For Kickoff Dinner

EAGLE SONG DANCERS   Spakwus Slolem, (translated,”Eagle Song Dancers), are members of the Squamish Nation. Geographically located in what is called the Lower Mainland of British Columbia. Our traditional territory being the Howe Sound, Vancouver to Whistler area. The Squamish have lived and utilized this area for over 10,000 years, having history traced back to the Great Flood, and an Ice Age.  We are a Coastal people, people of the cedar longhouses, of the great sea-going canoes, the racing war canoes, People of the Salmon. Our colourful history speaks of things of legend, of deeds of certain members of the Smylaith Tribe (Sasquatch), legends of the Animal Kingdom, which brings out Teachings of our Squamish People, the History of Takaya, the Wolf Clan, one of our Squamish Family’s History.  Spakwus Slolem is pleased and honoured to present songs and dances of yesterday, as well as today, and feel very honoured to represent our People in a good way, as our Ancestors had intended.   Learn more →

EAGLE SONG DANCERS

Spakwus Slolem, (translated,”Eagle Song Dancers), are members of the Squamish Nation. Geographically located in what is called the Lower Mainland of British Columbia. Our traditional territory being the Howe Sound, Vancouver to Whistler area. The Squamish have lived and utilized this area for over 10,000 years, having history traced back to the Great Flood, and an Ice Age.

We are a Coastal people, people of the cedar longhouses, of the great sea-going canoes, the racing war canoes, People of the Salmon. Our colourful history speaks of things of legend, of deeds of certain members of the Smylaith Tribe (Sasquatch), legends of the Animal Kingdom, which brings out Teachings of our Squamish People, the History of Takaya, the Wolf Clan, one of our Squamish Family’s History.

Spakwus Slolem is pleased and honoured to present songs and dances of yesterday, as well as today, and feel very honoured to represent our People in a good way, as our Ancestors had intended.

Learn more →

LAWRENCE RICHER, MD, MSc   Lawrence Richer MD, MSc is a Professor in the Department of Pediatrics, University of Alberta, Associate Dean Clinical Research and Director of the Northern Alberta Clinical Trials and Research Center (NACTRC). He also serves as the Associate Director of the Women and Children’s Health Research Institute (WCHRI), provincial co-lead for the Pragmatic Clinical Trials platform within the Alberta SPOR SUPPORT Unit (AbSPORU), and interim Divisional Director for Pediatric Neurology. He is a Pediatric Neurologist with clinical and research interests in the treatment of headache and disorders of the autonomic nervous system.  As Associate Dean, Clinical Research and Director of NACTRC he has a broad commitment to maximizing the use of health data to improve patient outcomes through research, to optimizing research administration processes, and to enhancing support for innovation in clinical trials. As Associate Director at WCHRI, he is leading the development of a clinical trials unit and data coordinating center for KidsCAN Trials – a national pediatric clinical trials network.

LAWRENCE RICHER, MD, MSc

Lawrence Richer MD, MSc is a Professor in the Department of Pediatrics, University of Alberta, Associate Dean Clinical Research and Director of the Northern Alberta Clinical Trials and Research Center (NACTRC). He also serves as the Associate Director of the Women and Children’s Health Research Institute (WCHRI), provincial co-lead for the Pragmatic Clinical Trials platform within the Alberta SPOR SUPPORT Unit (AbSPORU), and interim Divisional Director for Pediatric Neurology. He is a Pediatric Neurologist with clinical and research interests in the treatment of headache and disorders of the autonomic nervous system.

As Associate Dean, Clinical Research and Director of NACTRC he has a broad commitment to maximizing the use of health data to improve patient outcomes through research, to optimizing research administration processes, and to enhancing support for innovation in clinical trials. As Associate Director at WCHRI, he is leading the development of a clinical trials unit and data coordinating center for KidsCAN Trials – a national pediatric clinical trials network.


Featured Speakers

DR. SOREN GANTT (BCCHR)   Dr. Gantt obtained MD and PhD degrees through the Medical Scientist Training Program at New York University School of Medicine. He then completed his Pediatrics and Infectious Diseases Training at Seattle Children’s Hospital and a Masters in Public Health at the University of Washington.  In 2013, Dr. Gantt moved to University of British Columbia, where he is an Associate Professor of Pediatrics, Head of Infectious Diseases, and Director of Clinical Research at BC Children’s Hospital. Dr. Gantt's research interests include the prevention, diagnosis and management of congenital CMV infection.

DR. SOREN GANTT (BCCHR)

Dr. Gantt obtained MD and PhD degrees through the Medical Scientist Training Program at New York University School of Medicine. He then completed his Pediatrics and Infectious Diseases Training at Seattle Children’s Hospital and a Masters in Public Health at the University of Washington.

In 2013, Dr. Gantt moved to University of British Columbia, where he is an Associate Professor of Pediatrics, Head of Infectious Diseases, and Director of Clinical Research at BC Children’s Hospital. Dr. Gantt's research interests include the prevention, diagnosis and management of congenital CMV infection.

DR. MALCOLM OGBORN (IH)   Dr. Malcolm Ogborn is an Executive Medical Director for Medical and Academic Affairs at Island Health (IH).  Dr. Ogborn graduated in medicine from the University of Adelaide, and completed specialty training in pediatrics. Through his career, he joined several Canadian Health institutions on medical and executive roles. He became involved in youth aboriginal health issues. Dr. Ogborn’s research career involved both nationally funded basic research in experimental pathology, and nutritional modification of disease and clinical research in pediatric nephrology.

DR. MALCOLM OGBORN (IH)

Dr. Malcolm Ogborn is an Executive Medical Director for Medical and Academic Affairs at Island Health (IH).

Dr. Ogborn graduated in medicine from the University of Adelaide, and completed specialty training in pediatrics. Through his career, he joined several Canadian Health institutions on medical and executive roles. He became involved in youth aboriginal health issues. Dr. Ogborn’s research career involved both nationally funded basic research in experimental pathology, and nutritional modification of disease and clinical research in pediatric nephrology.

PAUL HARRIS, PhD   Paul Harris, PhD serves as Director for the Vanderbilt Office of Research Informatics and in this capacity oversees research data warehousing, data and information management platforms, patient recruitment services and other enterprise-wide informatics resources. He is active in large-scale international collaboration efforts and leads creation and dissemination of multiple software platforms including REDCap, MyCap, ResearchMatch, and TrialsToday.  Dr. Harris serves as PI for the NIH/NCATS Recruitment Innovation Center, co-director of Technology Innovation for one of three NIH/NCATS Trial Innovation Centers, and directs a number of operational teams developing tools for the NIH All of Us program.

PAUL HARRIS, PhD

Paul Harris, PhD serves as Director for the Vanderbilt Office of Research Informatics and in this capacity oversees research data warehousing, data and information management platforms, patient recruitment services and other enterprise-wide informatics resources. He is active in large-scale international collaboration efforts and leads creation and dissemination of multiple software platforms including REDCap, MyCap, ResearchMatch, and TrialsToday.

Dr. Harris serves as PI for the NIH/NCATS Recruitment Innovation Center, co-director of Technology Innovation for one of three NIH/NCATS Trial Innovation Centers, and directs a number of operational teams developing tools for the NIH All of Us program.


ROB TAYLOR   Rob Taylor is the team manager and lead developer of the REDCap platform at the Vanderbilt Institute for Clinical and Translational Research. He oversees the design and development of the REDCap software and manages the support staff that serve the Vanderbilt community and the entire REDCap consortium of partner institutions around the world.

ROB TAYLOR

Rob Taylor is the team manager and lead developer of the REDCap platform at the Vanderbilt Institute for Clinical and Translational Research. He oversees the design and development of the REDCap software and manages the support staff that serve the Vanderbilt community and the entire REDCap consortium of partner institutions around the world.

JEFF HAWLEY   Jeff Hawley is an IT Analyst, Sr for the Office of Clinical Research at the Duke University School of Medicine. His position focuses on REDCap administration, optimization & interoperability.

JEFF HAWLEY

Jeff Hawley is an IT Analyst, Sr for the Office of Clinical Research at the Duke University School of Medicine. His position focuses on REDCap administration, optimization & interoperability.

AMANDA MILLER, MLIS   Amanda Miller is an information management specialist who worked in marketing analysis performing disparity studies and as an ESL teacher before joining the University of Colorado REDCap administrative team in 2015. Her role there involves user training, database management, and user management and support. She earned her MLIS from Kent State in 2008, where she split her focus between database use, data and information management, and developmental literacy.

AMANDA MILLER, MLIS

Amanda Miller is an information management specialist who worked in marketing analysis performing disparity studies and as an ESL teacher before joining the University of Colorado REDCap administrative team in 2015. Her role there involves user training, database management, and user management and support. She earned her MLIS from Kent State in 2008, where she split her focus between database use, data and information management, and developmental literacy.


STEPHANY DUDA, PhD   Stephany Duda, PhD, is an Associate Professor of Biomedical Informatics in the School of Medicine at Vanderbilt University. Her work focuses on clinical research informatics and global health informatics, particularly issues in data capture, data quality, and international observational databases. Dr. Duda leads the Harmonist project, which builds REDCap-based research support tools for the International epidemiology Databases to Evaluate AIDS (IeDEA) consortium.

STEPHANY DUDA, PhD

Stephany Duda, PhD, is an Associate Professor of Biomedical Informatics in the School of Medicine at Vanderbilt University. Her work focuses on clinical research informatics and global health informatics, particularly issues in data capture, data quality, and international observational databases. Dr. Duda leads the Harmonist project, which builds REDCap-based research support tools for the International epidemiology Databases to Evaluate AIDS (IeDEA) consortium.

CLAIRE MACKELSON, M.Sc.   Claire Mackelson, M.Sc., completed her RN training at the Middlesex Hospital (London, UK) and has since enjoyed a varied career in health and safety. Specializing in program evaluation, Claire is responsible for determining effectiveness and efficiency of cardiac services in Island Health, British Columbia.

CLAIRE MACKELSON, M.Sc.

Claire Mackelson, M.Sc., completed her RN training at the Middlesex Hospital (London, UK) and has since enjoyed a varied career in health and safety. Specializing in program evaluation, Claire is responsible for determining effectiveness and efficiency of cardiac services in Island Health, British Columbia.

LAURA SHAW   Laura Shaw completed her Business Administration training in 2002 and began her health care career with Island Health in 2008 also completing the Quality Academy, Lean Design and Project Management. Laura focuses on quality improvement and assurance initiatives providing clinical support to cardiac services in Island Health, British Columbia.

LAURA SHAW

Laura Shaw completed her Business Administration training in 2002 and began her health care career with Island Health in 2008 also completing the Quality Academy, Lean Design and Project Management. Laura focuses on quality improvement and assurance initiatives providing clinical support to cardiac services in Island Health, British Columbia.

ANDREW (ANDY) MARTIN   Andrew Martin, PhD has a background in scientific research and software with emphasis in data processing and informatics. He loves to solve problems at the intersection of science, design, and technology to enable successful research and discovery. He has been at Stanford for 10 years and leads the Solutions team, the front door to Research IT services, connecting researchers with the appropriate solutions for data capture and management.

ANDREW (ANDY) MARTIN

Andrew Martin, PhD has a background in scientific research and software with emphasis in data processing and informatics. He loves to solve problems at the intersection of science, design, and technology to enable successful research and discovery. He has been at Stanford for 10 years and leads the Solutions team, the front door to Research IT services, connecting researchers with the appropriate solutions for data capture and management.

SUE LOWRY   Sue Lowry is a Database Programmer/Analyst at the University of Minnesota. She has been using REDCap and has been the REDCap Administrator at the University of Minnesota since 2008, starting on version 1. Since then REDCap at the U of MN has grown from 1 project to over 6,000 projects and almost 7,000 users. She is currently supporting programs in PHP and ColdFusion for data in MySQL and Oracle databases but has used many different programming languages and databases during her career.

SUE LOWRY

Sue Lowry is a Database Programmer/Analyst at the University of Minnesota. She has been using REDCap and has been the REDCap Administrator at the University of Minnesota since 2008, starting on version 1. Since then REDCap at the U of MN has grown from 1 project to over 6,000 projects and almost 7,000 users. She is currently supporting programs in PHP and ColdFusion for data in MySQL and Oracle databases but has used many different programming languages and databases during her career.

DYLAN RAY, MS   Dylan Ray is a Healthcare Data Analyst with Health Data Compass in the University of Colorado Denver Anschutz Medical Campus. He helps clinicians and hospital administrators get their hands on EHR and other data to solve complex healthcare problems and improve patient lives. He holds an MS degree in Health Informatics and has been with the University of Colorado for over three years.

DYLAN RAY, MS

Dylan Ray is a Healthcare Data Analyst with Health Data Compass in the University of Colorado Denver Anschutz Medical Campus. He helps clinicians and hospital administrators get their hands on EHR and other data to solve complex healthcare problems and improve patient lives. He holds an MS degree in Health Informatics and has been with the University of Colorado for over three years.

ANDY ARENSON   Andy Arenson is a Principal Programmer/Analyst for the Advanced Biomedical IT Core, a part of the Pervasive Technology Institute at Indiana University. He is the technical lead for Indiana University REDCap, and was the original developer of PHPCap and REDCap-ETL. Mr. Arenson’s previous work includes managing Geographic Information Systems at Rice University, implementing electronic data collection processes at the Baylor College of Medicine’s Human Genome Sequencing Center, and developing scheduling software for a natural gas pipeline company.

ANDY ARENSON

Andy Arenson is a Principal Programmer/Analyst for the Advanced Biomedical IT Core, a part of the Pervasive Technology Institute at Indiana University. He is the technical lead for Indiana University REDCap, and was the original developer of PHPCap and REDCap-ETL. Mr. Arenson’s previous work includes managing Geographic Information Systems at Rice University, implementing electronic data collection processes at the Baylor College of Medicine’s Human Genome Sequencing Center, and developing scheduling software for a natural gas pipeline company.

MARY GEDA RN, BSN, MSN   Mary is a REDCap@Yale Administrator and an Associate Director at the Yale Program on Aging. In addition to being a 1990’s movie-aficionado, she enjoys challenging her highly-skilled colleagues in the Data Management and Informatics Core to build adaptable research-support systems, which inevitably involve extensive programming by resident guru, Peter Charpentier. She is excited to attend the 2019 REDCapCon and share their latest monolithic creation, a REDCap external module known as “The Dudicator.”

MARY GEDA RN, BSN, MSN

Mary is a REDCap@Yale Administrator and an Associate Director at the Yale Program on Aging. In addition to being a 1990’s movie-aficionado, she enjoys challenging her highly-skilled colleagues in the Data Management and Informatics Core to build adaptable research-support systems, which inevitably involve extensive programming by resident guru, Peter Charpentier. She is excited to attend the 2019 REDCapCon and share their latest monolithic creation, a REDCap external module known as “The Dudicator.”

JACO DREYER   Jaco Dreyer is a Senior Research Data Manager at the Africa Health Research Institute (AHRI) - a HIV and TB research organisation based in KwaZulu Natal, South Africa. Jaco has more than 18 years in Data Management spanning from clinical- database programming and data management, to research data systems design and more. Jaco joined AHRI in 2015 and has been responsible for: Population Intervention Programme, DREAMS evaluation-, Multilevel HIV Prevention- and STAR projects. It is while working in these projects that Jaco has extensively used REDCap for data collection.

JACO DREYER

Jaco Dreyer is a Senior Research Data Manager at the Africa Health Research Institute (AHRI) - a HIV and TB research organisation based in KwaZulu Natal, South Africa. Jaco has more than 18 years in Data Management spanning from clinical- database programming and data management, to research data systems design and more. Jaco joined AHRI in 2015 and has been responsible for: Population Intervention Programme, DREAMS evaluation-, Multilevel HIV Prevention- and STAR projects. It is while working in these projects that Jaco has extensively used REDCap for data collection.

JIM MULLEN, PhD   Jim Mullen, PhD is a Principal Systems Analyst in the Advanced Biomedical Information Technology Core, a part of the Pervasive Technology Institute at Indiana University. He is the lead developer for the PHPCap, REDCap-ETL and REDCap-ETL External Module projects. Dr. Mullen’s previous work at Indiana University includes developing and managing software systems for the National Gene Vector Biorepository, and developing software for the Indiana CTSI (Clinical and Translational Sciences Institute) Hub and Laboratory of Neurophenomics.

JIM MULLEN, PhD

Jim Mullen, PhD is a Principal Systems Analyst in the Advanced Biomedical Information Technology Core, a part of the Pervasive Technology Institute at Indiana University. He is the lead developer for the PHPCap, REDCap-ETL and REDCap-ETL External Module projects. Dr. Mullen’s previous work at Indiana University includes developing and managing software systems for the National Gene Vector Biorepository, and developing software for the Indiana CTSI (Clinical and Translational Sciences Institute) Hub and Laboratory of Neurophenomics.

LUKE STEVENS   Luke has been working in software development for research since 2000, first in developing randomization and trial supplies management systems for pharma trials before switching (in 2009) to the more academic research environment of the Murdoch Children's Research Institute at the Royal Children's Hospital, Melbourne. At MCRI Luke heads a small team of Data Managers working to improve the tools, systems and services that support the Institute's researchers in their data management activities – especially REDCap.

LUKE STEVENS

Luke has been working in software development for research since 2000, first in developing randomization and trial supplies management systems for pharma trials before switching (in 2009) to the more academic research environment of the Murdoch Children's Research Institute at the Royal Children's Hospital, Melbourne. At MCRI Luke heads a small team of Data Managers working to improve the tools, systems and services that support the Institute's researchers in their data management activities – especially REDCap.

PETER CHARPENTIER, MPH   After a stint with the U.S. Forest Service and following an MPH from Yale in Biostatistics, Peter tucked into a long career supporting epidemiological and clinical research at Yale. He was for much of that time the Director of the Data Management and Informatics Core of the Yale Program on Aging. In retirement he is reborn as the Principal of CRI Web Tools LLC, a consulting company set up to produce REDCap external modules and other web tools for university-based research.

PETER CHARPENTIER, MPH

After a stint with the U.S. Forest Service and following an MPH from Yale in Biostatistics, Peter tucked into a long career supporting epidemiological and clinical research at Yale. He was for much of that time the Director of the Data Management and Informatics Core of the Yale Program on Aging. In retirement he is reborn as the Principal of CRI Web Tools LLC, a consulting company set up to produce REDCap external modules and other web tools for university-based research.

LYNN SIMPSON, MPH   Lynn Simpson, a graduate from Boston University with a Masters in Public Health, has more than fifteen years of academic and commercial diagnostic, device, drug discovery, and epidemiology research experience. She specializes in electronic data capture (EDC) and has initiated, designed, and maintained databases for clinical trials and observational studies. She’s managed the REDCap program at Partners HealthCare since 2009; and now manages multiple Enterprise Applications including: LabArchives, GitLab and StudyTRAX. In 2017, she was awarded the REDCap Consortium MVP and is now an avid REDCap tweeter: @REDCap_mvp2017

LYNN SIMPSON, MPH

Lynn Simpson, a graduate from Boston University with a Masters in Public Health, has more than fifteen years of academic and commercial diagnostic, device, drug discovery, and epidemiology research experience. She specializes in electronic data capture (EDC) and has initiated, designed, and maintained databases for clinical trials and observational studies. She’s managed the REDCap program at Partners HealthCare since 2009; and now manages multiple Enterprise Applications including: LabArchives, GitLab and StudyTRAX. In 2017, she was awarded the REDCap Consortium MVP and is now an avid REDCap tweeter: @REDCap_mvp2017

JASON RIGHTMYER   Jason Rightmyer is Director of Research Informatics at the Marcus Institute for Aging Research and founder of the Technology Innovation Center at Hebrew SeniorLife an affiliate hospital of Harvard Medical School. Jason is responsible for strategic oversight and planning, as well as supervision of all software engineering, data management and research computing operations for the Marcus Institute. Previously, Jason led clinical research IT operations at Boston Children’s Hospital and carries a degree in health informatics from the University of Minnesota. He has over two decades of experience in the fields of academic medicine, life sciences and pharmaceutical clinical trials research during which time he has spearheaded teams in the design, development and deployment of multiple EDC systems as well as countless, innovative platforms in the field of informatics.

JASON RIGHTMYER

Jason Rightmyer is Director of Research Informatics at the Marcus Institute for Aging Research and founder of the Technology Innovation Center at Hebrew SeniorLife an affiliate hospital of Harvard Medical School. Jason is responsible for strategic oversight and planning, as well as supervision of all software engineering, data management and research computing operations for the Marcus Institute. Previously, Jason led clinical research IT operations at Boston Children’s Hospital and carries a degree in health informatics from the University of Minnesota. He has over two decades of experience in the fields of academic medicine, life sciences and pharmaceutical clinical trials research during which time he has spearheaded teams in the design, development and deployment of multiple EDC systems as well as countless, innovative platforms in the field of informatics.